Events

Goodland Pour House Hosts Pints for PMLD #For The Love of Lilly Lou

One Community, One Cause, and One Hope – 

Join us to Support Families, Advance Awareness, and Inspire Hope at the Goodland Pour House

An all day event – Raffles, special drinks, great food, and community fellowship 

 All proceeds will go to For the Love of Lilly Lou, Inc.  

Lilly Lou Hope Walk & Family Fun Day

Join us for a heartwarming day of community, connection, and purpose at the Lilly Lou Hope Walk & Family Fun Day. This family-friendly event brings together supporters, families, and advocates to raise awareness and funding for Pelizaeus-Merzbacher-Like Disease (PMLD).

Participants will enjoy a short walk, activities for children, music, food, and time to connect with families who are part of this journey. Every step taken and every dollar raised helps move critical research forward and brings us closer to better treatments and a cure.

Highlights:

An Evening of Hope: Benefit Dinner & Fundraiser

An Evening of Hope is a special fundraising dinner dedicated to supporting research for Pelizaeus-Merzbacher-Like Disease (PMLD). This inspiring night will bring together donors, advocates, medical supporters, and families for a meaningful evening focused on impact, progress, and the future.

Guests will enjoy dinner, hear stories of strength and resilience, and learn how their support is directly helping advance research and bring hope to families affected by PMLD.

Highlights:

An Evening of Hope: Benefit Dinner & Fundraiser

An Evening of Hope is a special fundraising dinner dedicated to supporting research for Pelizaeus-Merzbacher-Like Disease (PMLD). This inspiring night will bring together donors, advocates, medical supporters, and families for a meaningful evening focused on impact, progress, and the future.

Guests will enjoy dinner, hear stories of strength and resilience, and learn how their support is directly helping advance research and bring hope to families affected by PMLD.

Highlights: