Events

Earth Day at Tortora's Pizza

Highlights:

Join us at Tortora’s Pizza & Tortoras Wood Fired Grille on Earth Day for a fun-filled evening of food, drinks, and family activities. We’ll have a dunking booth in the lawn area, a craft table for children’s activities, and a silent auction table with a variety of goodies. All proceeds will go to For the Love of Lilly Lou, Inc.  

Lilly Lou Hope Walk & Family Fun Day

Join us for a heartwarming day of community, connection, and purpose at the Lilly Lou Hope Walk & Family Fun Day. This family-friendly event brings together supporters, families, and advocates to raise awareness and funding for Pelizaeus-Merzbacher-Like Disease (PMLD).

Participants will enjoy a short walk, activities for children, music, food, and time to connect with families who are part of this journey. Every step taken and every dollar raised helps move critical research forward and brings us closer to better treatments and a cure.

Highlights:

An Evening of Hope: Benefit Dinner & Fundraiser

An Evening of Hope is a special fundraising dinner dedicated to supporting research for Pelizaeus-Merzbacher-Like Disease (PMLD). This inspiring night will bring together donors, advocates, medical supporters, and families for a meaningful evening focused on impact, progress, and the future.

Guests will enjoy dinner, hear stories of strength and resilience, and learn how their support is directly helping advance research and bring hope to families affected by PMLD.

Highlights:

An Evening of Hope: Benefit Dinner & Fundraiser

An Evening of Hope is a special fundraising dinner dedicated to supporting research for Pelizaeus-Merzbacher-Like Disease (PMLD). This inspiring night will bring together donors, advocates, medical supporters, and families for a meaningful evening focused on impact, progress, and the future.

Guests will enjoy dinner, hear stories of strength and resilience, and learn how their support is directly helping advance research and bring hope to families affected by PMLD.

Highlights: